Describes traumatic experiences and childhood traumatic stress. Discusses how trauma can affect gene regulation and importance of buffering traumatic experiences through early intervention and promoting resiliency.
Throughout childhood, many (if not most) children experience some type of traumatic experience, an event that threatens or harms their emotional or physical wellbeing. The NCTSN estimates that one in four children will experience a traumatic event before they are 16 years old.Traumatic experiences can be the result of a natural disaster such as an earthquake or tornado. Children can also experience trauma within their communities as a result of community violence and racial, cultural, or socioeconomic discrimination. Sexual and physical abuse, loss of a family member, bullying, or medical procedures can also be traumatic.
While many children experience one or more traumatic event, every child has different physiological and psychological responses. Though most of us would agree that certain stresses are serious – experiencing a life-threatening attack or losing a loved one – we always have to remember that stress and trauma can only be judged by those experiencing them. Variations in experiences, expectations, resources, and to some extent the way our brains and bodies are hard wired determine to a great extent what each individual perceives as stressful or traumatic. Stress comes in many forms. It can be positive, alerting us to dangers. Some stresses can focus our attention on challenges that, if we can face them, will lead us to better places in our lives. Some stresses are tolerable but others can lead to long lasting physical and emotional affects. Stress and trauma can change the way we look at the world – making us more attentive to risk than to possibility. Furthermore, it does not take a major disaster to create levels of stress that impact health: the “hassles” and worries that come from feeling economically vulnerable or scrutinized because of one’s race, religion, gender, or sexuality, are potentially as or more dangerous than exposures to even serious one-time trauma. Child traumatic stress is caused when a child is exposed to trauma or chronic stress and develops persistent reactions that affect the way they function on a day-to-day basis. Traumatic stress can make it difficult for a child to succeed at school or interact with others. It can also plant the seeds of physical and mental health problems that children may have to face for decades. Child traumatic stress can have an impact on many areas of development: emotional and behavior regulation; relationship formation and trust; maintaining attention while trying to learn new skills and knowledge. Children who have experienced traumatic stress may come to providers’ attention because of problems with their behavior, difficulties with sleeping or eating, or problems adapting to child care and school settings. In some cases, but certainly not all, childhood traumatic stress can lead to symptoms that are clinically diagnosed as post-traumatic stress disorder (PTSD). For example, the fifth edition of the Diagnostic and Statistical Manual (DSM-5) defined a developmental subtype of PTSD for children ages six years and younger. The preschool age-specific definition of PTSD is developmentally sensitive and focuses on recurrent psychological distress, avoidance behaviors, and increased arousal.
Exposures to chronic stress are fundamentally different than our experiences of chronic stress and should be assessed and addressed separately. Exposure encompasses any population subjected to a traumatic event. Experience of trauma refers to how an individual responds to trauma exposure. Stress can be experienced as positive, tolerable, or chronically unsoothed (or "toxic") depending on:
Some of those who experience stress will continue to show effects. Effects can be targeted with simple interventions, specialty services for physical and/or psychological complications, or coordinated teamwork
Though it has long been recognized that early childhood adversity can cause lifetime problems, it is only more recently that we have come to isolate and understand some of the mechanisms involved. For example, the field of epigenetics has produced evidence that our experiences can alter the function of our genes. Though the links are not well understood, we now known that experiences can change the ways that genes regulate key processes within our bodies. Two systems that have been explored in relationship to stress and trauma are the genes that regulate oxytocin and glucocorticoid receptors.
Stress and trauma can alter both of these systems, leading an individual to being chronically “on-guard” around others. For
example, children raised in stressful environments may be more likely to have elevated blood pressure or allergies as
adolescents compared to children raised in less stressful environments. Epigenetics has also started to explain how parental exposure to stress and trauma, even before children are conceived, may be passed down to future generations.
The fact that people react differently to stress and trauma suggests that there might be ways to help those who experience traumatic events to feel less impact or recover more quickly. Resilience refers to the ability to buffer the impact of stress as it happens and recover from the impact more quickly and completely. Resiliency has two main components that are closely related: a person’s own abilities – both innate and learned – to regulate their emotions and behaviors at a time of challenge, and the resources – social and material – that a person can mobilize for protection and response. There are many ways to define and measure recovery from a traumatic experience. For example, recovery can be measured by how quickly the body’s stress responses return to a normal state. Alternately, we might consider what it takes for someone to return to a state of optimism and security or adapt to new realities peacefully (for strategies on promoting resilience see Section III, Element
VI: Addressing Trauma-Related Health and Mental Health). Research in a number of fields support promising interventions for trauma and stress-related concerns in early childhood, some of which might be able to alter physiologic responses with long-term somatic and cognitive effects. Table 1 lists some of those with the strongest evidence:
Discusses four key foundations of trauma-informed integrated care; includes how to make the business case for trauma-informed integrated care
The Substance Abuse and Mental Health Services Administration (SAMHSA) outlines three criteria for trauma informed services, programs and organizations:
The Agency for Healthcare Research and Quality (AHRQ) defines integration as a process unifying care across different
providers and sites. In our case, it specifically means breaking down barriers between primary care, mental health services, families, and communities (Figure 2). If viewed from a family perspective, integration also includes unifying services for children and other members of their families, especially caregivers For us, trauma-informed integrated care refers to services that unite primary care, mental health, families, and communities while also integrating knowledge of the impact of trauma on all aspects of care. Trauma-informed integrated care seeks to understand the origins of trauma faced by members of communities, to aid efforts to prevent trauma, and to help those who experience trauma flourish despite it. The first step to trauma-informed integrated care is bringing together all members of the team representing primary care, mental health, families, and community services. Only once these key players are “at the same table” can care be transformed using a trauma-informed lens. In the next sections we will explore models of pediatric integrated care. In the following chapters we will outline how services for children and families can be integrated and trauma-informed.
Medical Home Model
In the 1960s, the American Academy of Pediatrics proposed the idea of the “medical home” for children as “a cultivated partnership between the patient, family, and primary care provider in cooperation with specialists and support from the community.” Though the idea has proven more difficult to implement than initially thought, medical homes are now more widely established. Many states and agencies have sponsored medical home learning collaboratives, from which we have drawn valuable lessons. More information is available at www.medicalhomeinfo.org.
Chronic Care Model
The chronic care model (CCM) (Wagner 1996) has provided a way of thinking about how to integrate primary and specialty care for conditions that need treatment and monitoring over time. The CCM outlines roles for patients, primary care providers, staff, and specialists as well as principles of collaboration between generalists-specialists and providers-patient-community.
The CCM provides the following guidance for specialist-generalist collaboration:
In addition, the CCM emphasizes provider-patient-community collaboration. The CCM is a model of behavior change, and one of its goals is to help providers partner with patients to develop and nurture over time the skills required for “self management.”
In our case, that means helping families feel more in control of their lives and develop the skills and knowledge to navigate the stressful circumstances that they face.
Each primary care office has a unique structure in place to work with their mental health affiliate – and vice versa. At the level of health care organizations, different services might be provided by the same organization (possibly even the same location) or require coordination across sites. Scheduling and medical record systems might be unified or separate. Clinicians caring for a family might meet regularly as teams, have protocols for talking with each other one-to-one, or have little or no communication with each other. The following table sets out some of the possible combinations and assigns each a “degree of integration,” with close and full integration theoretically being better.
We will now take a moment to explore three specific models of integrated clinical services that can effectively facilitate collaboration between primary care providers and mental health providers: (1) co-location (2) screening, brief intervention, and referral to treatment and (3) task shifting. In practice, elements of all three of these models are often combined.
Co-location
Co-location refers to the placement of a specialist physically in a primary care office (or the opposite – placing a general medical provider at a site that mostly provides mental health services). There is some evidence that co-location increases the proportion of patients who are able to complete a mental health referral. However, there are a number of potential pitfalls, and not all co-location efforts have been successful.
Below are a few suggested best practices for those interested in co-locating services:
Develop a work plan
Start off by developing a shared understanding between generalists and
specialists about how they will work together. What will the specialist help the
generalists learn? What criteria should be used to trigger informal
consultations, team discussions, and referrals? The specialist may need to
learn how the generalists work, too. Before starting, he or she may need to
“shadow” the generalists and spend some time understanding how patients
flow through the site.
Benefits Pitfalls
•! “One stop shopping” Reduces the number
of places clients have to visit, and sometimes
allows more than one type of care to be
delivered back-to-back in the same place
•! Reduce stigma: May reduce some of the
stigma or visibility associated with obtaining
mental health or trauma services – the facility
is not associated uniquely with mental health
or trauma care
•! Personalized referrals: Offers the
opportunity for personalized referrals –
specialist and generalist providers can meet
together with a family to jointly plan how they
will work together
•! Increase consultations: May increase the
chance that specialists and generalists can
informally consult with each other or work as
a team – they are in the same place and more
readily find each other
•! Does not ensure communication: Being in
the same building does not mean that
generalists and specialists will meet each
other or understand each other’s jobs. This
usually requires additional work
•! Diverts responsibility: The presence of the
specialist can lead the generalist to take even
less responsibility for knowing about mental
health or trauma care – the responsibility can
just be shifted
•! Overload specialists’ capacity: The colocated
specialist can be swamped with
referrals, creating delays in treatment that
discourage patients from returning (the same
as when the specialist is located somewhere
else)
•! Budget: No one business model will work
across all sites – in some places the
specialist can bill separately for her services,
in others there will have to be ways of
factoring specialist costs into an overall
budget
Table 4: Benefits and Pitfalls of Co-located Services
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! 23!
Make a communication plan
Both generalists and specialists should set up rules for how they will
communicate with each other and how their “native” work style will be
modified to fit the shared environment. For example, mental health workers
typically do not interrupt visits for telephone calls or knocks at their door, while
primary care providers frequently break visits up into segments and, in some
settings, may actually be seeing more than one patient simultaneously. How
will these styles mesh, especially when there is a perceived need for a quick
consultation or introduction of the patient and co-located therapist?
Set up mechanisms for sharing information
How will referrals be made, what information should they contain, and how will
the specialist communicate their findings and suggestions back to the
generalist? Can both specialist and generalist access the same medical
record? How will families be able to control and consent for the exchange of
information? Will mental health or substance treatment notes be kept
separately from general medical records?
Develop a business plan
With different types of funding, reimbursements, and billing allowed, how do
the generalists and specialists work in ways that are financially sustainable in
the practice? How are their varying types of work and workload supported?
How does the practice pay for some of the non-reimbursable activities, such
as cross-education, consultation, and care management?
[Note that all of the above points are discussed in greater detail later in the
toolkit, including strategies, since they apply to nearly all forms of integration,
not just to co-location.]
SBIRT (Screening, Brief Intervention, Referral to Treatment)
SBIRT is a model originally developed to identify individuals who could benefit
from alcohol and substance abuse treatment and link them to care. The SBIRT
model might be seen as a special application of the Chronic Care Model as the
two models have very similar elements. The core components of SBIRT are
discussed in Table 5.
! 24!
Table 5: Core Components of SBIRT
1)! Universal screening in primary care
2)! Identification of a specific problem
a)! Provider and patient agree that there is an issue
b)! They work to develop a shared understanding of why the issue requires help and why now is a
good time to act
3)! Brief counseling specific to the problem
•! What might the patient do about the problem now – including seeking more specialized
treatment
4) Long-term tracking of the issue since
a) Many patients may not immediately want to seek care
b) Even those who seek additional care may give it up
c) Many problems are recurring, even if successfully addressed in the short term
Task Shifting
Task shifting (or sharing) is a term for strategies that try to move tasks usually
delivered by specialists (who are in short supply) to less-specialized health
workers who are more easily accessible. For example, in some systems, mental
health professionals deliver all depression care. A task-shifting plan would move
some first-line depression treatments to primary care. Ideally, task shifting always
involves sharing – the specialist and generalist are really sharing responsibilities.
Specialists support generalists by providing training, advice to specific patients,
and by collaborating in the care of patients with greater levels of need. The main
motivations for task shifting are listed in Table 6 below.
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Provides an overview of the critical elements to implement integrated care.
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Defines trauma-informed integrated care and explains why it is a goal, including example success stories from the previous Collaboratives.
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Center for Mental Health Services in Pediatric Primary Care
Department of Health, Behavior, & Society, #707
P. (410) 955-1924
PICC is part of the National Child Traumatic Stress Network (NCTSN). The Substance Abuse and Mental Health Services Administration (SAMHSA), a US federal agency that is part of the Department of Health and Human Services, fund NCTSN and this project.